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BOS kids in the www

Many children with Bohring-Opitz Syndrome are presented in the world wide web. Here you can find a selection.

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Children with Bohring-Opitz Syndrome

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Sünne van Gemert-Godbersen

Lawyer turned DJ helps raise almost £700 for charity | Express & Star Bangor University, Rare Genetic Disorders, Students' Union, Live Set, New Inventions, How To Raise Money, Lawyer, Over The Years, Raising

Bangor University

Rare Genetic Disorders

Students' Union

How To Raise Money

Lawyer turned DJ helps raise almost £700 for charity | Express & Star

Mum of Peterborough 2-year-old with condition which means she is unable to sit or crawl pays tribute to hospice | Peterborough Telegraph Community Nursing, Family Shield, City Hospital, People News, Go Blue, Hospice, Fundraising Events, The Time Is Now, Peterborough

Community Nursing

Fundraising Events

The Time Is Now

Mum of Peterborough 2-year-old with condition which means she is unable to sit or crawl pays tribute to hospice | Peterborough Telegraph

BREDA - De NHTV-alumna Charlotte Driessen heeft een Independent Documentary Award gewonnen met haar eerste film ‘Kuluut’, die gaat over haar 5-jarige neefje met een zeldzame afwijking. De 25-jarige Bredase heeft in haar eigen zoektocht naar geluk haar oom, tante en twee neefjes gevolgd voor haar documentaire. “Mijn jongste neefje heeft het Bohring-Opitz syndroom. Vaak wordt een syndroom gelijk negatief geassocieerd. In mijn documentaire wil ik laten zien hoe je gelukkig kunt zijn ondanks de ... Children, Kids, Portraits, Hollywood, Student, Face, Documentary, Young Children

BREDA - De NHTV-alumna Charlotte Driessen heeft een Independent Documentary Award gewonnen met haar eerste film ‘Kuluut’, die gaat over haar 5-jarige neefje met een zeldzame afwijking. De 25-jarige Bredase heeft in haar eigen zoektocht naar geluk haar oom, tante en twee neefjes gevolgd voor haar documentaire. “Mijn jongste neefje heeft het Bohring-Opitz syndroom. Vaak wordt een syndroom gelijk negatief geassocieerd. In mijn documentaire wil ik laten zien hoe je gelukkig kunt zijn ondanks de ...

Warrenton Lifestyle Magazine May 2017 Porch Appeal, Prairie Style Houses, May 2017, Special Needs, Mothers Love, Virginia, Community, Magazine, Lifestyle

Prairie Style Houses

Warrenton Lifestyle Magazine May 2017

Vaughan & Jill - page 48 ❤ Boys, Magazines, Boy Babies

Vaughan & Jill - page 48 ❤

Olivia Genetics, Good People, Did You Know, Clinic, Something To Do, Let It Be

Something To Do

Children with Bohring-Opitz Syndrome

Children with Bohring-Opitz Syndrome

BOS kids in the www

KULUUT goes to Hollywood. Hollywood international independent documentary award. The Documentary

The Documentary

KULUUT goes to Hollywood. Hollywood international independent documentary award.

Lynn and Barry MacDonald with children (from left) Emma, Isla, Corey and John at Robin House Christmas Wishes, Robin, Parents, Daughter, Couples, House

Christmas Wishes

Lynn and Barry MacDonald with children (from left) Emma, Isla, Corey and John at Robin House

Why It's Okay for Your Child to Stare at Mine. Leave It To Beaver, Disability Awareness, Parenting, Im Not Perfect, Education

Leave It To Beaver

Disability Awareness

Why It's Okay for Your Child to Stare at Mine.

A worldwide exchange of information and awareness Che Guevara, People, Head Shots, Folk

A worldwide exchange of information and awareness

Chasing the Cleavers | Why isn't life like "Leave It To Beaver"? Sunglasses, Sunnies, Shades

Chasing the Cleavers | Why isn't life like "Leave It To Beaver"?

Fundraising

Walsall mum thanks police fundraisers and a national charity for Disney World holiday Walsall, Four Year Old, Stoke On Trent, A Team, Charity

Walsall mum thanks police fundraisers and a national charity for Disney World holiday

Kuluut Trailer Official _ Engels Finding Happiness, Documentaries, Film, Angel, Movie, Film Stock

Finding Happiness

Kuluut Trailer Official _ Engels

Spendenübergabe 100 Euro, Guys, Child, Kids Part, Kid

Spendenübergabe

Laura Benkarth, Nationalkickerin, versteigert ihr WM-Trikot für Jungen mit seltenem Bohring-Opitz-Syndrom - Freiburg - fudder.de Women's Football, Kicker, Soccer Players, Girls, Freiburg, Role Models, Unitards, Bavaria

Women's Football

Laura Benkarth, Nationalkickerin, versteigert ihr WM-Trikot für Jungen mit seltenem Bohring-Opitz-Syndrom - Freiburg - fudder.de

Kylee is a 3.5yr old little girl with Bohring Opitz Syndrome(BOS). Who loves people and being exposed to mostly everything. She is always so happy and we try to always give her opportunities to try and do new things. Bohring Opitz is a rare syndrome that currently (to the best of our knowledge) ... Special Needs Mom, Go Fund Me, Love People, Little Girls, Knowledge, Happy

Special Needs Mom

Kylee is a 3.5yr old little girl with Bohring Opitz Syndrome(BOS). Who loves people and being exposed to mostly everything. She is always so happy and we try to always give her opportunities to try and do new things. Bohring Opitz is a rare syndrome that currently (to the best of our knowledge) ...

Wyatt was diagnosed with Bohring Opitz Syndrome on September 15th. The BOS diagnosis finally answers the question I've had for so long, "Was this my fault?" No, it was a spontaneous mutation at conception. In some ways that's a relief, but it comes with concerns. There are less then 60 BOS diagno... Conception, September, Things To Come

Wyatt was diagnosed with Bohring Opitz Syndrome on September 15th. The BOS diagnosis finally answers the question I've had for so long, "Was this my fault?" No, it was a spontaneous mutation at conception. In some ways that's a relief, but it comes with concerns. There are less then 60 BOS diagno...

Bowie with his family Ellie 13, Lyla 5, Masie 11 and parents Bekki and Mark. Rare Disorders, Bowie, Couple Photos

Bowie with his family Ellie 13, Lyla 5, Masie 11 and parents Bekki and Mark.

John and Steve with Bowie Rix - edited and compressed for web

John and Steve with Bowie Rix - edited and compressed for web

Traveling through uncharted Waters Captain Jack, Lunch Box, Traveling, Faces, Adventure

Traveling through uncharted Waters

Kuluut Trailer April 2016 (EN) We are so excited! The new Trailer is promising to be a great documentary. A documentary about a family with an extraordinary child with a rare syndrome, the Bohring-Opitz Syndrome, but most of all about the happiness of the family, even when they experience some difficult times. See the BEAUTY! Coming soon! New Trailers, Happiness, Times, Beauty, Bonheur

Kuluut Trailer April 2016 (EN) We are so excited! The new Trailer is promising to be a great documentary. A documentary about a family with an extraordinary child with a rare syndrome, the Bohring-Opitz Syndrome, but most of all about the happiness of the family, even when they experience some difficult times. See the BEAUTY! Coming soon!

This map is an opportunity for families of children with BOS to meet and connect each other and maybe – one day that comes from meeting face-to-face. We Are Strong, Rare Disease, Maybe One Day, Opportunity, Families, Connect, Meet

This map is an opportunity for families of children with BOS to meet and connect each other and maybe – one day that comes from meeting face-to-face.

Does a diagnosis change things? Change, The Face

Does a diagnosis change things?

Bohring-Opitz Syndrome - RareConnect Discussion Groups Discussion Group, Continents, Language

Discussion Group

Bohring-Opitz Syndrome - RareConnect Discussion Groups