That's about it. For the record our disability system is broken and corrupt. I literally was rejected for being "too young" despite needing help to bathe. I had a lawyer tell me that multiple amputees get rejected - as in missing more than 1 limb! - and they're "not disabled enough." The system is broken and it is killing people. Only reason I'm alive is family took me in and cares for me, and they shouldn't have that burden. But once we get to a point where we can't work, we're disposable.
SEDh - Skin and mucosal features of EDS hypermobility type. --- Atrophic, nonpapyraceous scar (a). Accentuated crease reticulum of the palm (b). Keratosis pilaris (c). Piezogenic papules at wrists after compression (d). Extensive abdominal striae atrophicae (e). Postsurgical scar with anetoderma-like herniation of the subcutaneous fat (f). Apparent absence of the lingual frenulum (g). Radiographic orthopanoramic showing extensive tooth loss (h). Blue sclerae (i).
Fingers that sometimes won’t fing. | Community Post: 31 Random Facts About Ehlers-Danlos Syndrome
Fact 43- I think I've noticed this before.
Testing, testing, 1 2 3… | This is why raising awareness of common symptoms of Ehlers-Danlos Syndrome is SO important. You don’t know whose life you could change for the better, just by helping them find answers.
Digestive problems... gut instinct. | 31 Random Facts About Ehlers-Danlos Syndrome
21 Songs to Listen to on a Hard Day With Chronic Pain
Explains the noise in my knee... add a Cartilage lesions and im screwed for life xD xD