Joyce Bongers
Meer ideeën van Joyce
That's about it. For the record our disability system is broken and corrupt. I literally was rejected for being "too young" despite needing help to bathe. I had a lawyer tell me that multiple amputees get rejected - as in missing more than 1 limb! - and they're "not disabled enough." The system is broken and it is killing people. Only reason I'm alive is family took me in and cares for me, and they shouldn't have that burden. But once we get to a point where we can't work, we're disposable.

That's about it. For the record our disability system is broken and corrupt. I literally was rejected for being "too young" despite needing help to bathe. I had a lawyer tell me that multiple amputees get rejected - as in missing more than 1 limb! - and they're "not disabled enough." The system is broken and it is killing people. Only reason I'm alive is family took me in and cares for me, and they shouldn't have that burden. But once we get to a point where we can't work, we're disposable.

SEDh - Skin and mucosal features of EDS hypermobility type. --- Atrophic, nonpapyraceous scar (a). Accentuated crease reticulum of the palm (b). Keratosis pilaris (c). Piezogenic papules at wrists after compression (d). Extensive abdominal striae atrophicae (e). Postsurgical scar with anetoderma-like herniation of the subcutaneous fat (f). Apparent absence of the lingual frenulum (g). Radiographic orthopanoramic showing extensive tooth loss (h). Blue sclerae (i).

SEDh - Skin and mucosal features of EDS hypermobility type. --- Atrophic, nonpapyraceous scar (a). Accentuated crease reticulum of the palm (b). Keratosis pilaris (c). Piezogenic papules at wrists after compression (d). Extensive abdominal striae atrophicae (e). Postsurgical scar with anetoderma-like herniation of the subcutaneous fat (f). Apparent absence of the lingual frenulum (g). Radiographic orthopanoramic showing extensive tooth loss (h). Blue sclerae (i).

EDS

EDS

603ccd7dd938557d1c3d0de8193c6592.jpg 750×750 pixels

603ccd7dd938557d1c3d0de8193c6592.jpg 750×750 pixels

Fingers that sometimes won’t fing. | Community Post: 31 Random Facts About Ehlers-Danlos Syndrome

Fingers that sometimes won’t fing. | Community Post: 31 Random Facts About Ehlers-Danlos Syndrome

Fact 43- I think I've noticed this before.

Fact 43- I think I've noticed this before.

Testing, testing, 1 2 3… | This is why raising awareness of common symptoms of Ehlers-Danlos Syndrome is SO important. You don’t know whose life you could change for the better, just by helping them find answers.

Testing, testing, 1 2 3… | This is why raising awareness of common symptoms of Ehlers-Danlos Syndrome is SO important. You don’t know whose life you could change for the better, just by helping them find answers.

Digestive problems... gut instinct. | 31 Random Facts About Ehlers-Danlos Syndrome

Digestive problems... gut instinct. | 31 Random Facts About Ehlers-Danlos Syndrome

21 Songs to Listen to on a Hard Day With Chronic Pain

21 Songs to Listen to on a Hard Day With Chronic Pain

Explains the noise in my knee... add a Cartilage lesions and im screwed for life xD xD

Explains the noise in my knee... add a Cartilage lesions and im screwed for life xD xD